parents of kids with Type 1

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Comment by natalie morales on November 6, 2009 at 11:28am

any parent in brooklyn, new york?
my son has type one and there seem to be no one that he can share or understand...... it would be nice for him to chat

Comment by kAiTs_mOm on October 29, 2009 at 11:23am

Awesome, thanks for the info. I will contact the leads you provided and post any helpful information I dig up.

Comment by Natasha Bowlds on October 29, 2009 at 11:15am

We are in a private school, so this doesn't pertain to us, but I have heard a lot of parents say that contacting the ADA is the best way to go. They should have a local rep for you to speak to, who can help. Also - here is a woman who is supposed to have all the answers to these types of things - try contacting her!Crystal Jackson, Manager, Legal Advocacy, National Office 1701 North Beauregard Street, Alexandria, VA 22311, Telephone - 703-549-1500 Ext. 2108 Fax - 703-549-8748 cjackson@diabetes.org

Comment by kAiTs_mOm on October 29, 2009 at 9:12am

Hi, I'm kaits_mom and hoping someone can help me with the following: the school district nurse has been giving Kait a hard time so i'm trying to find answers to some questions. 1. Does Kait have to go to the health room at least once a day? Kait is 15, has been T1 for 5 years, and knows how to care for her diabetes. She doesn't want to go to the health room-she knows where the medical department is and if she needs them she'll come to them. Legally, I know everyone has the right to refuse medical treament as well as the choice as to who provides us that treatment. 2. Does this right follow her to the school environment? Meaning, can she refuse treatment from the school nurse? Something about the nurse did not sit right with her. Get this: Nurse asked Kait a question about bgl's. Kait thought she was asking her what her range was. Nurse tells Kait she is wrong as a non-diabetic range is 70 to 110. For this reason, Nurse writes on Kaits IHP "student displays lack of knowledge regarding medication, diet, blood sugar monitoring and excercise." Huh? What does a non-diabetic range have to do with Kaits ability to care for herself? After all, she is a diabetic and that range doesn't pertain to her...her endo set her range at 70 to 150. Bytw, she answered the question correct as it pertains to her. The Nurse told me this story and asked me the same question. She was not specific-the answer given was determined by how the question was interpreted by the person being asked... I gave Kaits range. 3. Where can I go to find out answers to specific questions such as these? The school has their best interest before Kaits so I don't think they always provide the most honest answers. Thanks in advance for any and all input --Kaits_mom

Comment by Natasha Bowlds on September 9, 2009 at 8:30pm

Kimberly, yes - we had a great time. Both times. We only went to Magic Kingdom both times though also. The second time was with the Children with Diabetes conference which was absolutely amazing.

Comment by Joseph Boyd on September 9, 2009 at 2:28pm

Great info about DIsney World everyone! Thanks alot for your input. It will be very helpful, as we too are going there at the end of September. I enjoyed the other website (allears) as mentioned below...some great tips!

We are hoping to avoid the endless line waiting, as my Type 1 son is 3 and blood sugar numbers can fluctuate wildly, especially when exercising (walking, waiting in line in heat, etc).

We are very excited about several Disney Dining experiences set up (Breakfast with Mickey, Dinner w/ Princesses, etc). They had an upgrade feature that includes all meals and one meal with the characters each, and was not much more than we figured we would spend on normal meals.
Good luck and thanks to all who post!

Comment by kimberly powers on September 6, 2009 at 7:28pm

thanks natasha.....that is great to know....did you have fun when you went?

Comment by Natasha Bowlds on September 6, 2009 at 6:35pm

Oh, another thing I was warned about is that the fridges in the rooms can be very cold - like freeze your insulin cold, so make sure you either bring a little thermometer, or if there's an adjuster, make sure it's not all the way to "cold."

Comment by kimberly powers on September 6, 2009 at 11:18am

thanks everyone for their suggestions.....they were so helpful

Comment by MelissaBL on September 6, 2009 at 8:53am

I went as a teen on injections and as an adult on a pump. It's VERY do-able. Allears.net is certainly the best resource. Take twice the supplies you need and be prepared to argue about the shaded area thing - that's as much as they would offer me, but at Animal Kingdom, one of the rides didn't even have a shaded area option (Everest) and they told me tough luck. There are fridges in most of the resort rooms and you can request one if they didn't give you one. You can take your own snacks and water into the park, too, unlike most other amusement parks. The first aid facilities at each park are very clean, cool, and have friendly staff - which was great when I needed a clean, private place for a pod change.

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