TuDiabetes - A Community for People Touched by Diabetes

Penny R.

parents of kids with Type 1

Information

parents of kids with Type 1

This is a group for the parents of kids with diabetes.

Members: 428
Latest Activity: 1 day ago

Welcome

Welcome to the parents of kids with Type 1 group. I'm so excited that we now have 426 members!!!

I hope you find this group useful. Send me an email if I can help you in anyway.

Thanks.
Penny R.

Discussion Forum

Goretti Lopez

Rapid Acting Insulin 10 Replies

Started by Goretti Lopez. Last reply by gisela cabello Nov 14.

Natalie

Flu & H1N1 vaccines 14 Replies

Started by Natalie. Last reply by gisela cabello Nov 14.

Rachel

Ugh. 5 Replies

Started by Rachel. Last reply by Julie Nov 11.

Liz Dyer

Does anyone live in Winnipeg? 1 Reply

Started by Liz Dyer. Last reply by MelissaBL Nov 8.

patrice larson

multiple children with type one 3 Replies

Started by patrice larson. Last reply by Karen Brackett Nov 6.

Tanya Paul

Our first real low. 23 Replies

Started by Tanya Paul. Last reply by natalie morales Nov 6.

Erin Halvorson

The JDRF backpack must be replaced 5 Replies

Started by Erin Halvorson. Last reply by Cheryl Gravelle Nov 3.

SFMAMA

Benefit of being diabetic 5 Replies

Started by SFMAMA. Last reply by Jan Nov 3.

Stephanie

Keytones and kids that are old enough to manage at school 23 Replies

Started by Stephanie. Last reply by Elizabeth Oct 31.

Maria Moyer

Birthday cake/icing 13 Replies

Started by Maria Moyer. Last reply by kelly Oct 31.

Christi

Teens with Type 1 38 Replies

Started by Christi. Last reply by Stacy Palmer Sep 21.

SFMAMA

Sometimes, you just have to laugh! 4 Replies

Started by SFMAMA. Last reply by Elizabeth Sep 19.

Stephanie

Newly diagnosed nephew angry 5 Replies

Started by Stephanie. Last reply by Stephanie Sep 15.

cocotteyvette

Kids with omnipod ????? 11 Replies

Started by cocotteyvette. Last reply by Erin Halvorson Aug 28.

Lisa Stratton

Finding a babysitter 6 Replies

Started by Lisa Stratton. Last reply by Vicki S Aug 26.

stretched2thin

Keeping the number good. 19 Replies

Started by stretched2thin. Last reply by stretched2thin Aug 20.

Alyson Kohl

Preteens Issues Update and now a CGM question 16 Replies

Started by Alyson Kohl. Last reply by Jan Aug 18.

Gillian

Parents of Adolescents with Type 1 Diabetes (11-17 years old) Research 3 Replies

Started by Gillian. Last reply by Alyson Kohl Aug 16.

Roulla & Johnny

Question about Kids & Continous Glucose Monitors ???? 15 Replies

Started by Roulla & Johnny. Last reply by Jan Jul 31.

Comment Wall (81 comments)

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81 Comments

natalie morales Comment by natalie morales on November 6, 2009 at 11:28am
any parent in brooklyn, new york?
my son has type one and there seem to be no one that he can share or understand...... it would be nice for him to chat
kAiTs_mOm Comment by kAiTs_mOm on October 29, 2009 at 11:23am
Awesome, thanks for the info. I will contact the leads you provided and post any helpful information I dig up.
Natasha Bowlds Comment by Natasha Bowlds on October 29, 2009 at 11:15am
We are in a private school, so this doesn't pertain to us, but I have heard a lot of parents say that contacting the ADA is the best way to go. They should have a local rep for you to speak to, who can help. Also - here is a woman who is supposed to have all the answers to these types of things - try contacting her!Crystal Jackson, Manager, Legal Advocacy, National Office 1701 North Beauregard Street, Alexandria, VA 22311, Telephone - 703-549-1500 Ext. 2108 Fax - 703-549-8748 cjackson@diabetes.org
kAiTs_mOm Comment by kAiTs_mOm on October 29, 2009 at 9:12am
Hi, I'm kaits_mom and hoping someone can help me with the following: the school district nurse has been giving Kait a hard time so i'm trying to find answers to some questions. 1. Does Kait have to go to the health room at least once a day? Kait is 15, has been T1 for 5 years, and knows how to care for her diabetes. She doesn't want to go to the health room-she knows where the medical department is and if she needs them she'll come to them. Legally, I know everyone has the right to refuse medical treament as well as the choice as to who provides us that treatment. 2. Does this right follow her to the school environment? Meaning, can she refuse treatment from the school nurse? Something about the nurse did not sit right with her. Get this: Nurse asked Kait a question about bgl's. Kait thought she was asking her what her range was. Nurse tells Kait she is wrong as a non-diabetic range is 70 to 110. For this reason, Nurse writes on Kaits IHP "student displays lack of knowledge regarding medication, diet, blood sugar monitoring and excercise." Huh? What does a non-diabetic range have to do with Kaits ability to care for herself? After all, she is a diabetic and that range doesn't pertain to her...her endo set her range at 70 to 150. Bytw, she answered the question correct as it pertains to her. The Nurse told me this story and asked me the same question. She was not specific-the answer given was determined by how the question was interpreted by the person being asked... I gave Kaits range. 3. Where can I go to find out answers to specific questions such as these? The school has their best interest before Kaits so I don't think they always provide the most honest answers. Thanks in advance for any and all input --Kaits_mom
Natasha Bowlds Comment by Natasha Bowlds on September 9, 2009 at 8:30pm
Kimberly, yes - we had a great time. Both times. We only went to Magic Kingdom both times though also. The second time was with the Children with Diabetes conference which was absolutely amazing.
Joseph Boyd Comment by Joseph Boyd on September 9, 2009 at 2:28pm
Great info about DIsney World everyone! Thanks alot for your input. It will be very helpful, as we too are going there at the end of September. I enjoyed the other website (allears) as mentioned below...some great tips!

We are hoping to avoid the endless line waiting, as my Type 1 son is 3 and blood sugar numbers can fluctuate wildly, especially when exercising (walking, waiting in line in heat, etc).

We are very excited about several Disney Dining experiences set up (Breakfast with Mickey, Dinner w/ Princesses, etc). They had an upgrade feature that includes all meals and one meal with the characters each, and was not much more than we figured we would spend on normal meals.
Good luck and thanks to all who post!
kimberly powers Comment by kimberly powers on September 6, 2009 at 7:28pm
thanks natasha.....that is great to know....did you have fun when you went?
Natasha Bowlds Comment by Natasha Bowlds on September 6, 2009 at 6:35pm
Oh, another thing I was warned about is that the fridges in the rooms can be very cold - like freeze your insulin cold, so make sure you either bring a little thermometer, or if there's an adjuster, make sure it's not all the way to "cold."
kimberly powers Comment by kimberly powers on September 6, 2009 at 11:18am
thanks everyone for their suggestions.....they were so helpful
MelissaBL Comment by MelissaBL on September 6, 2009 at 8:53am
I went as a teen on injections and as an adult on a pump. It's VERY do-able. Allears.net is certainly the best resource. Take twice the supplies you need and be prepared to argue about the shaded area thing - that's as much as they would offer me, but at Animal Kingdom, one of the rides didn't even have a shaded area option (Everest) and they told me tough luck. There are fridges in most of the resort rooms and you can request one if they didn't give you one. You can take your own snacks and water into the park, too, unlike most other amusement parks. The first aid facilities at each park are very clean, cool, and have friendly staff - which was great when I needed a clean, private place for a pod change.
 

Members (428)

Jan Penny R. Vicki S Natalie Elizabeth Kathy Tracy Kseniya Lisa Stratton Tonyia Crebbin stretched2thin Sarah M Kelly Erin Halvorson Stephanie Tara Kirsten Sigrist Kelly L Cobi Campbell Ronda Darling Christina Luis Jessica Park Lea B SFMAMA Angela Lotus Lorraine David McLeod Renaee MelissaBL
 
 

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