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I've been something of an emotional wreck over the past week -- there's been a lot going on, and my communication skills have been, well, shoddy. I've felt isolated, but unable to reach out, overwhelmed, but unable to ask for help, and fatigued, but unable to close my eyes and sleep. In the past seven days, we've had appointments with Richard's pediatrician, his endocrinologist, his insulin pump trainer, his physical therapist, and our family's social worker. I've exchanged emails and phone cal… Continue
Posted on June 19th, 2008 at 10:43am — 2 Comments
Lately I've been ruminating on what makes people look at other people. What draws your attention? Why? Richard O's insulin pump draws a lot of looks from strangers. It's okay, it doesn't bother me, but it does make for some interesting conversation. At the post office: "Is that a cell phone that he's carrying around? Wait, don't tell me, it's a GPS device." At the grocery store: "Check out the mp3 player on the baby." Then there are the looks you get when your T1 child is having a Wacky Bl… Continue
Posted on June 9th, 2008 at 12:06am — 3 Comments
Since we've started on the pump, a number of people have asked if I can breathe a little easier now. The short answer is, "Kinda." The long answer is, "No, not really, because I'm not confident that all of the pump settings are correct yet, so I have to watch him like a hawk to make sure things aren't going awry." I have to keep reminding myself, it's going to take some time and some patience before things are fine-tuned. I just have to keep logging his numbers faithfully, and eventually we'll… Continue
Posted on May 30th, 2008 at 12:10am —
The shaggy-haired cabbie glanced back at me in the rearview mirror. "You know, speaking as the father of two, mommies have got to take some time for themselves. You've got to put your own oxygen mask on first." Validation comes from the strangest places sometimes, no? Today was one of those days. One of those days when it feels like all the oxygen has been sucked out of the atmosphere and you can't breathe. At all. I don't often feel like this, and as our days have been going lately, I wouldn… Continue
Posted on May 23rd, 2008 at 12:20am — 2 Comments
It's 3 am, and once again I am up monitoring Richard O's blood sugar. We did well during the day today -- his numbers were much closer to target. However, we're still having problems with the infusion sites. I had to change his sites not once, but twice over the past 24 hours, which has been frustrating to me -- his numbers were climbing, and not responding to corrections through the pump. I had to wake up a rather grumpy Hubby after midnight tonight to give me a hand with the site change, and w… Continue
Posted on May 21st, 2008 at 11:44am — 1 Comment
Manny Hernandez
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i really wasn't saying that we can't get frustrated with situations. we can and we do. we're human after all. i just wanted to remind people that unless you live it, it doesn't seem real. even i have family that don't want to know or learn about diabetes. when i say i can't have something it goes through one ear and out the other. today, my daughter bought me candy. because it's dark chocolate. so i know what you mean. i just wanted to remind people about the other side of the coin too. hope i didn't upset you. we get so tuned into our own problems sometimes that we forget that others don't think like us. if you know what i mean. family and friends mean well, but they don't seem to want to learn anything about our needs. for me.... my husband left me because "i let him down" by getting sick. so i do understand about the frustration.